Music loving, Cameron Alderman, 10 from Bristol has Norrie disease which left him blind as a baby and losing his hearing which will plunge him into a world of silent darkness. There are only thought to be an estimated 500 cases of the extremely rare disease worldwide.
His parents are desperate to raise awareness about Cameron’s plight and with the Norrie Disease Foundation and the 100 Strong team, a fundraising campaign ‘The Race Against Silent Darkness’ has been launched on JustGiving.com. All funds raised will go directly to the charity and research on the rare disease.
The campaign challenge will take place on May 27, which will get Cameron to the top of Ben Nevis, the UK’s highest mountain at 1,344m for him to stand at the top. At that moment he will be the highest person on land in the UK.
