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FOUND: Debra org | Mind Blowing Facts

Woman With One Of The World’s Rarest Skin Conditions Details Extreme Measures To Protect Herself

"Aside from the dressings, I have to be careful moving around the house, making sure I don't do anything that causes extra friction to my skin, including excess walking,” she said.

Bored Panda

Zara Tindall Gave Modern Disney Princess Vibes on a Date Night Out With Her Husband, Mike Tindall, Monday Night

Princess Anne's daughter was all over Instagram after her appearance at DEBRA's 10th anniversary Great Chefs dinner Monday night.

Marie Claire

Girl with rare skin disease excited to go to secondary school

Casey Connors, 12, from Clondalkin, is getting help to brief her new teachers and classmates before she starts secondary school in the autumn.

The Independent UK

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Charity work shows ‘the real me’, says Graeme Souness, on being made CBE

The football star is the vice president of Debra UK which raises awareness of epidermolysis bullosa, a group of genetic skin conditions.

Evening Standard

Hollywood star Colin Farrell hails friend’s courage after Dublin Marathon finish

Farrell took part in the event to raise money for Debra, the national charity supporting people living with epidermolysis bullosa.

Evening Standard

Graeme Souness ‘delighted and humbled’ to be made CBE in King’s birthday honours

Souness has worked with the DEBRA charity since 2019.

The Independent UK

Woman bullied over skin blistering disorder writing books to stop other children ‘feeling like freaks’

Vie Portland, 52, was born with a rare inherited skin disorder which caused her to get ‘bullied’ and feel ‘like a freak’ throughout her childhood

The Independent UK

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Darcee, 5, is cover star of book explaining her skin condition to classmates

Darcee has epidermolysis bullosa (EB), also known as butterfly skin.

The Independent UK

Souness charity swim smashes target as donations continue to flood in a week on

The 70-year-old has raised nearly £1.5million - almost £400,000 more than his £1.1million target.

Daily Record

‘Butterfly skin’ girl who sparked Souness charity challenge to receive award

Isla Grist will be one of many inspiring Scots to receive an award at this year’s Pride of Scotland Awards.

The Independent UK

Rangers legend Graeme Souness completes charity swim of English Channel

The footballing icon has helped to raise more than £1.16million after being inspired by the bravery of Scots schoolgirl Isla Grist who suffers from a painful skin condition.

Glasgow Live

Tyson Fury and Tom Holland send well wishes to Graeme Souness ahead of charity swim

The pair wished the ex-Scotland star good luck in videos posted to Instagram.

Daily Record

Graeme Souness raises £1million ahead of mammoth swim across English Channel

Rangers legend Graeme Souness has smashed the £1million mark as he prepares to swim the 21-mile English Channel this weekend to fund research into epidermolysis bullosa

Glasgow Live

Football legend Graeme Souness hits £1m mark ahead of 21-mile Channel swim for charity

The ex-Scotland star, who turned 70 last month, is due to tackle the 21-mile stretch of water tomorrow with a group of ex-marines to raise money for 14-year-old schoolgirl Isla Grist.

Daily Record

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Daily Record

Rangers legend Graeme Souness raises £350k after pledging to swim English Channel in aid of Scots girl

The former Rangers and Liverpool star, 70, has become close to 14-year-old epidermolysis bullosa sufferer Isla Grist and her family, who live on the Black Isle near Inverness.

Dublin Live

Dublin mum to run 19th mini-marathon in aid of charity that helped daughter with rare condition

The Terenure woman wants to raise funds for a national charity that helps support her daughter who lives with a skin condition known as Butterfly Skin

Daily Mirror

Jamie Carragher responds to Graeme Souness after tearful appearance on live TV

Liverpool icon Jamie Carragher sent a short message to fellow ex-Red Graeme Souness after confirming his imminent plans on TV following his sudden Sky Sports departure

The Guardian - UK

Graeme Souness to swim Channel for charity’s appeal on rare skin disorder

Former footballer, manager and pundit aims to raise £1.1m to help people with EB, saying: ‘This will be the most difficult challenge I’ve ever taken on’

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Daily Record

Football legend Graeme Souness will swim the English Channel to raise £1.1m for charity

Souness takes on challenge to raise awareness and funds to help people with painful and incurable "butterfly skin" condition.

The National (Scotland)

Rangers legend Graeme Souness reveals next move after Sky Sports exit

The former pundit is aiming to complete a swim of the Channel crossing to raise money for DEBRA’s A Life Free of Pain appeal.

Glasgow Live

Rangers and Celtic legends come together for charity sports quiz in Glasgow

Sporting stars including Graeme Souness and Martin O’Neill unite in Glasgow next weekend to take part in a massive charity sports quiz, raising funds for Epidermolysis Bullosa.

Daily Record

Graeme Souness raises £500k for charity after being moved to tears by kids with incurable skin condition

Footballing hero Souness is inspired by the courage of young people suffering from epidermolysis bullosa.

Daily Mirror

Tyson Fury donates £10,000 to charity after winning Anthony Joshua bet with Frank Warren

Fury made a wager with Warren that the fight with Anthony Joshua would not happen, and the money was delivered by the hall-of-fame promoter in cash at the press conference for his upcoming fight with Derek Chisora

Wales Online

Baby’s ‘Freddy Krueger’ blisters leaves parents afraid to cuddle him for fear of deadly infections

Giorgio Evans-Lobato is in almost constant pain and the slightest touch causes him to have blisters all over his body

People

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