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RARE PHOTOS: 2 - The Real Truth

The Guardian view on gene editing: breakthroughs need a new social contract

Editorial: Cutting-edge therapies exist, but the market cannot deliver them cheaply. Britain must build NHS capacity so that cures become collective goods, not expensive products

The Guardian - UK

‘Healthy baby’ diagnosed with rare genetic condition after chest infection

Zarwa Kakar has a rare type of dwarfism that affects just over 30 other people globally

The Independent UK

Innovative therapy gives hope to patients whose blood cancer ‘seemed incurable’

Almost two thirds of patients with T-cell acute lymphoblastic leukaemia involved in a clinical trial of the treatment are now disease-free.

Evening Standard

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Three-year-old Nathaniel’s life ‘transformed’ by improvements in genetic tests

Only around 500 children globally have a neurological condition called KIF1A.

Evening Standard

‘An aftertaste that haunted me’: the best (and worst) meat-free sausages, tasted and rated

Will our survey of supermarket meatless sausages reveal hearty but healthy veggie bangers or rubbery tubes mechanically stuffed with joyless compost?

The Guardian - UK

Girl diagnosed with rare cancer after symptoms dismissed as growing pains

Aubrey, now six, was eventually diagnosed with acute lymphoblastic leukaemia (ALL)

The Independent UK

‘Normal’ girl, 4, diagnosed with rare disorder that causes blindness, paralysis

Her parents, Emma Vukic and Max Bridge, say they are in a phase of ‘prolonged grief’

The Independent UK

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Parents who lost children to cancer ring St Paul’s bells in their memory

A ceremony was held at the cathedral in central London to remember the 253 children who die of cancer each year in the UK on average.

Evening Standard

Princess Diana time capsule prematurely opened after 34 years in London

The lead-cased box marked the laying of the foundation stone of Great Ormond Street Hospital (GOSH) in 1991. Its content has been revealed...

Euronews

Princess Diana’s 1990s time capsule opened at Great Ormond Street Hospital

Nostalgic memorabilia from the decade, including a pocket TV, a Kylie Minogue CD and a solar-powered calculator, were uncovered

Evening Standard

Diana’s 90s time capsule contained Kylie CD and pocket television

The capsule was buried at Great Ormond Street Hospital in London in 1991.

Evening Standard

Princess Diana’s time capsule dug up at hospital revealing nineties relics inside

The capsule was meant to lie buried for hundreds of years - but has now been unearthed

The Independent UK

Lab-grown lungs help develop treatment for babies with rare condition

The potentially fatal condition affects one in every 3,000 babies

The Independent UK

Lab-grown mini-lungs used to test new treatment for rare condition in babies

It is hoped patients will soon be able to access the treatment for severe congenital diaphragmatic hernia.

The Independent UK

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The Independent UK

Boy with fragile skin disorder given hope after new treatment

Gabrielius was diagnosed with recessive dystrophic epidermolysis bullosa when he was two weeks old.

The Independent UK

Great Ormond Street Hospital criticised by NHS watchdog for using physician associates to fill surgical rota

The Care Quality Commission found the trust also had a shortage of nurses trained to carry out tracheostomies

The Independent UK

Great Ormond Street Hospital building issues see children’s surgeries cancelled

IN FULL

The Independent UK

Great Ormond Street Hospital surgeons forced to use mobile phone torches during surgery after power cut

Water leaks and power outages included in recurring building issues faced by Great Ormond Street Hospital, a watchdog has found

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The Independent UK

Mother’s delight as gene therapy offers hope to three-year-old

Gunreet Kaur has a rare inherited condition which can be fatal.

The Independent UK

Girl, 3, becomes youngest patient to receive groundbreaking treatment

It is the first NHS England commissioned gene therapy in the UK infused directly into the brain

The Independent UK

I thought my son had an ear infection – but it was a rare type of cancer

Ilan Choudhury, 11, was diagnosed with acute myeloid leukaemia

The Independent UK

Boy with ‘death sentence’ disease living a normal life after breakthrough gene therapy

Four-year-old Eisa can now play football and go to school – things his family feared he may never do

Evening Standard

London hospital gene therapy breakthrough gives boy with ‘death sentence’ disease a normal life

Eisa Hussein took part in a clinical trial testing the new gene therapy at Great Ormond Street Hospital

The Independent UK

Woman contemplating eye removal has sight saved in time for wedding

A first-of-its-kind lab discovered Ellie Irwin had an eye infection.

Evening Standard

Father-of-three to run London Marathon for daughter who defied 8% cancer survival chance

Mr McPartland, from Eltham in southeast London, is taking on the London Marathon on Sunday, April 27 this year for Great Ormond Street Hospital (GOSH) charity

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