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BIZARRE: 3 - You Need To See This

Abbott Torpedoes Sickle-Cell Legislation on Juneteenth Weekend

Democratic State Representative Jarvis Johnson called the governor's veto of the Sickle Cell bill "petty, bullshit politics."

Texas Observer

World Sickle Cell Awareness Day observed in Chamarajanagar

Medical experts participating in the World Sickle Cell Awareness Day in Chamarajanagar, on Monday, June 19, called upon the members of the tribal community to voluntarily subject themselves to screening in a bid to eradicate the disease from the country.

The Hindu

This Humble Virus Could Revolutionize How We Treat Genetic Diseases

A new type of gene therapy could be cheaper, safer, and more efficient at treating diseases like muscular dystrophy and sickle cell disease.

Inverse

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Fast-growing illness affects hundreds in region - and causes strokes and organ failure if untreated

Sickle Cell Disease is the country's fastest growing genetic blood disorder and can be fatal - but there is hope

Manchester Evening News

NHS lists the 20 most painful health conditions including migraines, arthritis and gout

These conditions may last for a few seconds or a lifetime but all have the potential to cause debilitating pain, with shingles, a slipped disc, and sciatica also on the list

Chronicle Live

Sickle cell disease fears spark awareness drive and urgent appeal for Black blood donors

Some of the most influential Black people in Britain - including Dame Sharon White and Lord Simon Woolley - have joined efforts to raise awareness of the shortage

Daily Mirror

India's stretched health care fails millions in rural areas

Two Indigenous women both have a genetic blood disorder but lead vastly different lives

The Independent UK

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Sickle cell patient's success with gene editing raises hopes and questions

A Mississippi woman's life has been transformed by a treatment for sickle cell disease with the gene-editing technique CRISPR. All her symptoms from a disease once thought incurable have disappeared.

WEKU

Doctors think they’re drunks or addicts. This ‘warrior’ fights so his disease is understood

KANSAS CITY, Mo. -- Kevin Wake has suffered three strokes. He is only 54. The first one taught him how humiliating an emergency room visit can be for Black people living with the blood disorder sickle cell disease.

Tribune News Service

Somatic genome editing therapies are becoming a reality – but debate over ethics, equitable access and governance continue

Hundreds of experts from around the world gathered at the Francis Crick Institute in London this week for the Third International Summit on Human Genome Editing.

The Conversation

Sickle cell patients receiving poor care at NHS hospitals, damning report claims

Brits suffering from sickle cell are suffering such sub-standard treatment in NHS hospitals that they are resisting going in for help despite suffering debilitating pain, a report has claimed

Daily Mirror

Sadiq Khan urges BAME Londoners to donate blood

London mayor Sadiq Khan has urged black, Asian and minority ethnic (BAME) people to donate blood, to boost supplies for lifesaving treatments.Mr Khan gave blood himself at City Hall on Tuesday morning in a bid to set to an example for BAME people, who come forward to donate in disproportionately…

Evening Standard

Sickle cell disease patients in England feel neglected, report says

NHS accused of providing ‘substandard’ care after study says people have poor hospital experiences that can cause harm

The Guardian - UK

Sickle cell cure will be cost-effective if health disparities considered -study finds

(This Dec.13 story has been corrected to remove reference to Sanofi in the fifth paragraph)

Reuters

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Tribune News Service

For patients with sickle cell disease, fertility care is about reproductive justice

Teonna Woolford has always wanted six kids. Why six?

Daily Mirror

Woman called 999 while in hospital because she thought she 'was going to die'

Ara Emile has claimed that she is "lucky to still be alive" after her two-week-long stay at Princess Alexandra Hospital in Essex where she was receiving treatment for Sickle Cell disease

The Independent UK

They endured chronic pain and constant blood transfusions. Now a breakthrough drug has given them a new lease of life

Sickle cell disease sufferers face a lifetime filled with episodes of excruciating pain. But they tell Nadine White and Thomas Kingsley a new treatment has given them fresh hope

Daily Mirror

'I feel cursed by sickle cell disease - my life depends on others coming forward'

Siliana Coelho, who says the pain she can experience is like being repeatedly hit by a hammer, calls for black blood donors to help save her life as NHS Blood and Transplant estimate that 40,000 new black-heritage donors are needed

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Daily Mirror

Woman fighting sickle cell disease says blood donors keep her alive

Social worker Stephanie Danso wants to raise awareness about sickle cell anaemia, a disease that occurs predominantly in people of African and African-Caribbean origin

Evening Standard

What is sickle cell disease? Symptoms and treatments

Everything you need to know about sickle cell disease

Evening Standard

NHS calls for more black blood donors to help treat sickle cell disease

Demand for blood donations to treat the disease has risen by 67 per cent over the past five years

Daily Mirror

What is sickle cell disease? Common symptoms and can it be treated?

Sickle cell disease is a serious and lifelong health condition. Here's everything you need to know about symptoms, causes and what treatment is available for it

The Guardian - UK

Sickle cell disease: black donors urged to give blood as demand from patients soars

NHS says sickle cell is ‘fastest growing genetic condition in UK’ and demand for blood has jumped 67% in five years

The Independent UK

Record number of Black blood donors needed to treat sickle cell disease, NHS says

‘More demand for care than ever before,’ health chiefs say

The Independent UK

NHS makes ‘urgent’ call for black blood donors

More donors are needed to treat patients with sickle cell disease.

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NHS Race and Health Observatory

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