My son, Lorcán Mullan, who has died aged 23, was born with hypoplastic left heart syndrome, a severe congenital heart disease that required three open heart surgeries by the time he was five.
Despite a lifetime dealing with health issues he never let those difficulties define him. Even when he went on to develop protein loss enteropathy (PLE) in his teens his response was always to look at what he could do to make himself better. As he grew up, though, it was his dyslexia that seemed to be his biggest obstacle.