15-month-old Ophelia has a rare genetic disorder that only affects 12 children in the entire world. Seven weeks after she was born the little girl was diagnosed with a condition called neurodegenerative condition RNF13.
She has the abilities of a newborn baby despite almost being one-and-a-half years old. Little Ophelia has up to 20 seizures a day and depends on oxygen day and night.
Her condition also means she has a reflux that can make her choke and is fed through a tube. She also cannot sit up and is reliant on others to move her.
