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AAP
AAP
Emily Verdouw

UNCOVERED: You feel helpless call for epilepsy awareness care - The Untold Story

Two out of three cases of Sudden Unexpected Death in Epilepsy could be prevented. (Supplied by Epilepsy Action Australia/AAP PHOTOS)

Every night Stu Place puts his son Will to bed knowing the four-year-old could die.

"You live with this anticipatory grief. It's a strange concept," he told AAP.

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