THE TRUTH ABOUT: Rett - The Untold Story

Bilingualism possible in people with rare genetic condition that normally limits speech

Rett syndrome is a rare neurological condition that disrupts physical and linguistic development, affecting around one in 10,000 women and even fewer men. For decades, researchers assumed that people with the condition, many of whom lose speech during early childhood, were confined to a limited range of cognitive and linguistic…

The Conversation · Sep 2, 2025

Amy Reyes obituary

Other lives: Music-loving teenager who was a consummate communicator, despite the restrictions imposed on her by Rett syndrome

The Guardian - UK · Mar 20, 2025

How stylish Sofia inspired an award-winning idea

Monika Mironov won gold at this year's AusMumpreneur Awards.

The Canberra Times · Aug 24, 2024

Disabled people claim they've been left isolated by day centre's permanent closure

Mothers of service users said they were heartbroken by the news of the closure of the local day centre

Wales Online · Dec 9, 2022

Ketamine Could Soon Be A Treatment Option For This Rare Genetic Neurological Disorder

Specialty biopharma company PharmaTher Holdings Ltd. (OTCQB: PHRRF) has entered into an evaluation and exclusive option agreement with Case Western Reserve University (CWRU)

Benzinga · Nov 1, 2022

Devastated mother describes how her toddler forgot how to crawl and talk 'overnight'

Ruby Pollard, from Trafford in Greater Manchester, was initially believed to have autism, but the reality was something far worse as she had a rare disorder

Daily Mirror · Oct 2, 2022

'My toddler forgot how to crawl and talk overnight - now she's locked in her body'

Ruby Pollard may never walk or talk again

Manchester Evening News · Oct 2, 2022

What you should know about Rett syndrome, the condition that Richard Engel's son had

NBC correspondent Richard Engel announced that his son Henry, who had been diagnosed with Rett syndrome as an infant, died on August 9. Here's what to know about the disorder.

WEKU · Aug 23, 2022

What is Rett syndrome? Richard Engel mourns death of 6-year-old son Henry

NBC News correspondent Richard Engel announced his son Henry passed away from Rett syndrome, an incurable genetic neurological disorder

The Independent UK · Aug 19, 2022

Savannah Guthrie shares sweet tribute in honour of Richard Engel’s late son

Richard Engel announced on Thursday that his six-year-old son had passed away from rare neurological disorder

The Independent UK · Aug 18, 2022