DARK SECRETS: Duchenne uk | Vintage Vibes

‘Breakthrough’ drug for severe muscle wasting condition set for NHS rollout in England

Givinostat will be made available to eligible patients with Duchenne muscular dystrophy after its manufacturer struck a commercial deal with NHS England

The Independent UK · May 7

Parents of 10-year-old twins with same debilitating illness describe ‘nightmare’ NHS battle

‘It’s so close – and yet we’re stuck,’ says mother of twins with rare muscular disorder

The Independent UK · Jun 12, 2025

Parents whose sons are losing ability to walk face ‘nightmare’ battle with NHS

Families are now facing a postcode lottery over who gets the drug givinostat, which can slow progress of Duchenne muscular dystrophy.

Evening Standard · Jun 12, 2025