Parents of 10-year-old twins with same debilitating illness describe ‘nightmare’ NHS battle
‘It’s so close – and yet we’re stuck,’ says mother of twins with rare muscular disorder
The Independent UK ·
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SHOCKING: Pete day - What They Never Told You
Parents whose sons are losing ability to walk face ‘nightmare’ battle with NHS
Families are now facing a postcode lottery over who gets the drug givinostat, which can slow progress of Duchenne muscular dystrophy.
Evening Standard ·
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