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FORGOTTEN HISTORY: 4 - The Untold Story

‘Life-changing’ results for children with severe epilepsy in pioneering drug trial

Children with Dravet syndrome have taken part in a clinical trial at Sheffield Children’s Hospital

The Independent UK · May 2, 2025

Drug trial for severe epilepsy has transformed children’s lives, families say

The parents of children with Dravet syndrome taking part in a clinical trial at Sheffield Children’s Hospital have reported life-changing results.

Evening Standard · May 2, 2025

Suspects detained by police denied essential insulin, cancer and epilepsy drugs, damning report claims

Exclusive: One patient experienced such bad withdrawal symptoms that they admitted to crimes they did not commit so they could be remanded to prison where they would be allowed their prescription again, report claims

The Independent UK · Apr 20, 2025

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Major Scottish charity blames Labour tax rises as 'crucial' service cut

A MAJOR Scottish charity has pointed to the Labour Government’s tax rises after closing down a “crucial” service ...

The National (Scotland) · Apr 8, 2025

Patients in A&E ‘risk getting worse because of missed medicine doses’

Time critical medicines are those prescribed for existing conditions, such as insulin for diabetes, Parkinson’s drugs and epilepsy medication.

Evening Standard · Apr 6, 2025

Jess Warner-Judd: ‘I want to finish my track career on my terms, not epilepsy’s’

After her seizure in Rome last June, Jess Warner-Judd tells Ben Bloom about rebuilding her health and running career and plans for a final summer on the track

The Guardian - UK · Mar 26, 2025

Brexit a key factor in worst UK medicine shortages in four years, report says

Nuffield Trust says supply chains have shifted, with medicines for epilepsy and cystic fibrosis among those now scarce

The Guardian - UK · Mar 22, 2025

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New brain scan method could help people with drug-resistant epilepsy

Researchers develop technique that can accurately pinpoint lesions, increasing chances of successful surgery

The Guardian - UK · Mar 21, 2025

New scanner technique may offer hope for patients with drug-resistant epilepsy

The method could result in more people with the condition being eligible for life-changing surgery.

Evening Standard · Mar 21, 2025

How plant biology mirrors our own

Salon · Mar 5, 2025

How AI could help detect epilepsy before radiologists

The technology could have been used on about one in five of the 630,000 people with epilepsy in the UK

The Independent UK · Feb 24, 2025

AI could help detect epilepsy-linked brain lesions that are often missed – study

The software, known as Meld Graph, was developed by scientists at King’s College London and University College London.

Evening Standard · Feb 24, 2025

Epilepsy in children: Seizure attacks in young kids, essential tips for parents

Epilepsy in children is a difficult journey for parents. The very natural reactions of fear, helplessness can be overwhelming. This is often worsened by the social stigma associated with epilepsy. The constant worry about the next seizure given it’s unpredictable nature, balancing treatments and hospital visits with normal life and…

The Times of India · Feb 24, 2025

Hope for children with severe form of epilepsy as NHS rolls out new drug

Fenfluramine has been recommended by Nice for patients aged two and over with Lennox-Gastaut syndrome.

Evening Standard · Feb 20, 2025

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Grandmother Indicted For Child Abuse After Girl With Epilepsy Dies

Arizona grandmother indicted for child abuse after granddaughter with epilepsy found dead in unsanitary conditions. Case highlights the importance of safeg...

The Times of India · Feb 7, 2025

When your child’s daydreams are more than just dreams: Identifying signs of Childhood Absence Epilepsy (CAE)

Daydreaming or short spells of absentmindedness are often overlooked as normal behaviour in children. Are these short spells just what they seem or are they associated with some neurological condition?

The Guardian - UK · Jan 27, 2025

‘Little bits of magic create tries’ – England’s Tommy Freeman on wing wizardry, epilepsy and not always being the best player growing up

Card tricks are not the only sleight of hand the Northampton flyer will hope to show, he tells Robert Kitson, as Saturday’s opening Six Nations contest against Ireland looms

Evening Standard · Jan 22, 2025

London student with epilepsy died after spending days desperately tying to get medication

Coroner demands NHS review following inquest into death of Brunel student Charlie Marriage in Camberwell

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The Guardian - UK · Jan 20, 2025

Brain implant that could boost mood by using ultrasound to go under NHS trial

Devices may have potential to help patients with conditions such as depression, addiction, OCD and epilepsy

Medical Daily · Jan 15, 2025

Man Died After Pharmacy Ran Out Of Epilepsy Drug, Left Him With An 'IOU' Note

A recent coroner's report concluded that epilepsy was a contributory factor in the man's death.

Latin Times · Jan 14, 2025

Man Suffers Fatal Heart Attack After Pharmacy Runs Out of Meds, Gives Him 'IOU' Note Instead

A 44-year-old man in Leeds, England, tragically died after a pharmacy's repeated failure to supply life-saving epilepsy medication.

The Guardian - UK · Jan 10, 2025

Man with epilepsy in Leeds died in fall after pharmacy ran out of drug

David Crompton, 44, was reportedly given ‘IOU’ for prescription medication before fatal incident

The Guardian - UK · Dec 21, 2024

Scientists map use of epilepsy drug in England and Wales linked to birth defects

Data is used for the first time to show regional differences in the uptake of a single medicine – sodium valproate – and the potential benefits are striking say researchers

Inverse · Dec 10, 2024

The Promises Of New Neuron Generation To Fight Aging Brains

Your brain can still make new neurons when you’re an adult and researchers are looking to enhance that process for brain health.

Benzinga · Dec 9, 2024

CBD Drug For Tuberous Sclerosis: Caregivers Continue Epidiolex Treatment Citing Seizure Reduction And Cognitive Improvements

The majority of caregivers of patients with tuberous sclerosis complex (TSC) planned to continue Epidiolex treatment, citing benefits like reduced seizure frequency and improvements in cognition and communication. That's according to data from the BECOME-TSC (BEhavior, COgnition, and More with Epidiolex) caregiver survey, revealed by Jazz Pharmaceuticals plc (NASDAQ: JAZZ).…

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